We are currently developing a wearable biofeedback system for use with lower-limb prostheses. Once developed the biofeedback system could serve as a training tool for lower-limb amputees to improve gait and balance.
Access technologies can help people with severe motor impairments communicate. However, many of the available devices have limited customization potential. We have created an access technology which users will be able to personalize at home to recognize their specific vocalizations, keywords and/or facial movements. We want to evaluate the performance and usability of this new access technology.
Accuracy of community pediatricians’ diagnosis of developmental concerns compared to a multi- disciplinary team assessment
We are studying how we identify and diagnose children with developmental concerns in Ontario.
This study will help us develop a better understanding of autistic adults/adults with ASD. We will explore aging and brain function amongst autistic adults/adults with ASD.
Our team is trying to identify the clinical profiles of children diagnosed with Avoidant/Restrictive Food Intake Disorder and Autism Spectrum Disorder.
Communication can be challenging for children without expressive speech and functional movements. We are currently developing a brain-computer interface (BCI) communication system for children with disabilities. We hope to find out if children with special communication needs can learn to use this technology to communicate basic messages.
Bi-weekly outpatient rehabilitation program for young children with Spinal Muscular Atrophy (SMA) treated with genetic-based therapies
Current clinical studies have found that active rehabilitation may improve physical function in children with SMA. However, no one knows for sure how active therapy may add to the benefits of genetic based therapies alone. We hope to determine if our outpatient rehabilitation program will improve physical function in children with SMA treated with genetic based therapies.
Childhood Cerebral Palsy Integrated Neuroscience Discovery Network “CP-NET” – Clinical Database Platforms
The Childhood Cerebral Palsy (CP) Integrated Neuroscience Discovery Network “CP-NET” is designed to bring together children with CP, their families, and clinical and basic scientists to foster neuroscience discoveries through integrated translation. Understanding the underlying neuroscience mechanisms, pathology, physiology, and genomics of CP is critical to developing improved treatments. In particular there is a critical need to link translationally-oriented neuroscience research with cutting-edge neurorehabilitation approaches for CP.
Codesigning and evaluating the usability of a workplace disclosure tool for Canadian youth and young adults on the autism spectrum
Our team is looking for youth and young adults on the autism spectrum to help codesign and provide feedback on a prototype (early draft) of an online workplace disclosure decision-aid guide and planning tool. We want to know if you found the tool useful, easy to use, liked or disliked it, and if anything needs to be added, changed, and/or removed.
The research team at Holland Bloorview Kids Rehabilitation Hospital would like to learn more about the experiences of youth with disabilities and their families during the COVID-19 pandemic. We would like you to complete an interview and get your perspective on how you have adjusted to change, and your mental and physical health.
We want to learn from youth with disabilities about their views on patient engagement in research – what it means to them and how we can support this.
Discrimination, ableism and racism hurt but inclusion can heal: Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions [Youth Interview]
Our team would like to understand the diverse lived experiences of youth with disabilities and particularly how disability intersects with race, ethnicity and/or gender.
Enhancing Care for Young People with Muscular Dystrophy: Addressing the Human Dimensions of Progressive Illness Experience
This project aims to explore and enhance compassionate care for young people with muscular dystrophy (MD) and their families.
We want to understand the experiences of working and looking for work among youth with non-visible disabilities who identify as belonging to a minority racial and/or ethnic group Specifically, we want to learn about how your identity impacts your experiences with workplace inclusion, disability disclosure, and workplace accommodations.
Health and wellness are important aspects of the care provided to children and youth with CP at Holland Bloorview. Yet despite its importance incorporating a wellness approach into clinical practice remains a challenge. Barriers such as lack of resources and time, uncertainty regarding how to prioritize wellness aims, and how to address the diverse and individual needs of children and families, can interfere with wellness promotion. Our study will partner with clinicians, children and families to collaboratively identify and attend to the wellness needs and aspirations of children with CP and families , toward the delivery of holistic, family and child-centred care. In this study “wellness” refers to the emotional, existential, social, and moral dimensions of illness experiences and care that co-exist with the physical/biological and technical dimensions. Our goal in the study is to partner with practitioners, young people and families to explore what wellness means to them, how wellness does/can align with clinical care, and to identify approaches, techniques and tools for collaboratively enhancing wellness.
We want input from employers and human resource personnel in evaluating an evidence-based tool to help employers to engage in disability disclosure discussions with their employees, helping to enhance disability confidence and sensitivity.
We want youth’s input in evaluating an evidence-based toolkit to help youth with disabilities to learn about how and when to disclose their condition to potential employers.
The research team at Holland Bloorview Kids Rehabilitation Hospital is conducting a study to understand the differences and similarities in psychological outcomes between youth with persistent concussion symptoms and youth with anxiety. This will help researchers improve treatments for youth with these conditions.
The research team at Holland Bloorview developed an e-Learning module called Teach ABI. This module is created for educators to support students with Acquired Brain Injury (ABI). The objective is to raise Ontario educators’ awareness and knowledge of ABI and promote positive outcomes for children with ABI in the education system.
We have learnt that children with disabilities and weight management and wellness needs, along with their families often experience challenges and difficulties accessing health and wellness support and/or weight programs.
Our genomics study will identify and characterize genes that confer risk to autism spectrum and related neurodevelopmental disorders.
Helping Hand: The effectiveness of a modified Constraint-Induced Movement Therapy program for children with acquired brain injury
Exploring the use of using constraint induced movement therapy to improve upper extremity functioning and occupational performance in children following acquired brain injury.
We want clients (ages 12 to 29) and parents/guardians (any adult family member in a caregiving role) of clients ages 12 to 29 to do an interview about how young people deal with life’s challenges.
Left in the waiting room: A pilot study of a digital intervention for siblings of children with disabilities
The research team at Holland Bloorview Kids Rehabilitation Hospital would like to invite you to participate in an intervention called i-SibworkS, an online peer support group intervention led by clinicians to serve the mental health needs of siblings of children and youth with disabilities.
Left in the waiting room: a pilot study of a digital intervention pilot for siblings of clients at Holland Bloorview or Kinark Child and Family Services
The research team at Holland Bloorview Kids Rehabilitation Hospital would like to invite you to participate in an intervention called i-SibworkS, an e-health and peer support group intervention led by clinicians to serve the mental health needs of siblings of children and youth with disabilities.
Measuring brain synchrony between children (both with or without an autism spectrum disorder diagnosis) and their parents while drawing pictures together.
Has your child been diagnosed with cerebral palsy? Your child may be eligible to participate in a randomized controlled clinical trial that will investigate the effectiveness of a medication called metformin, and whether it helps to improve your child’s movement and thinking skills.
Moving to the beat: Examining the effects of auditory rhythm on motor coordination in children living with and without developmental coordination disorder
Our team is trying to understand how young brains react to sounds and if auditory beats can help children with movement difficulties coordinate their movements better.
Navigating the Medical and Social Merry-Go-Round: Understanding the Caregiving Experiences of Parents from Racialized Backgrounds that Care for Children Living with Autism Spectrum Disorder (ASD)
The HEART Lab at Holland Bloorview is doing a study to understand the caregiving experiences of parents who identify as coming from a racialized background and care for a child with autism. In the study, you will be asked to discuss your caregiving e xperiences in which we will explore topics such as cultural stigma. In this study you will also participate in an art activity in which you can express your experiences.
Parent Perspectives on How to Communicate About Mental Health with Children and Youth with Physical Disabilities
The research team wants to know what is important to the parents of young people with physical disabilities in regards to mental health and wellness. We will use this information to inform clinical guidelines for more effective and targeted early identification and addressing of mental health needs.
Pilot evaluation of a workplace disclosure tool for Canadian youth and young adults on the autism spectrum
Our team is looking for youth and young adults on the autism spectrum to evaluate an online workplace disclosure decision-aid tool called DISCLOSURE (Do I Start the Conversation and Let On, Speak Up and Reveal?). We want to assess the usability, feasibility, and acceptability of the tool and if it supports self-determination and decision-making skills.
We are collecting information to help in our understanding of how genes, brain and bodies are different if a person has a neurodevelopmental disorder or is typically developing.
This study looks at how programming options can be used to help children with disabilities participate in educational and/or therapeutic activities on a playground. We are interested in learning more about how accessible playgrounds can be leveraged through programming options (e.g., facilitated play activities, student education plans, physiotherapy programs, etc.) We want to understand how play programming can be incorporated into accessible playgrounds to help children with disabilities meet their social, educational, and therapeutic/rehabilitative goals.
To understand how genes affect the brain, body, and behavior and translate this understanding into new ways to help individuals with autism and associated neurodevelopmental disorders.
R2Play: Testing a stimulated sports environment to support return-to-play decision-making following youth/young adult concussion
The research team at Holland Bloorview Kids Rehabilitation Hospital is developing a system to help youth and young adults with concussion return to their sport life (return-to-play). We would like you to test the system, R2Play and get your feedback so we can understand the value and challenges associated with this system.
Research to provide educators the skills and resources to work with children with acquired brain injury (ABI)
A research team at Holland Bloorview has developed an e-Learning module called Teach-ABI. The objective of this module is to raise Ontario educators’ awareness and knowledge of acquired brain injury and promote positive outcomes for children with ABI in the education system.
Research to understand healthcare experiences of racialized youth with disabilities, their parents/caregivers, and the healthcare providers who serve them
We are trying to learn more about what it is like having a disability and being racialized. We want to hear about the unique experiences of racialized youth with disabilities, their parents/caregivers, and the healthcare providers that serve them, in getting or providing the healthcare and resources that they need.
Our team wants to know about the physical, mental, and sexual wellbeing of youth with physical disabilities. We hope to discuss how youth with physical disabilities think and feel about their sexuality. These experiences are important and may help improve programs about sexuality for youth with disabilities.
We are currently recruiting typically developing adolescents for a research study on human computer interaction. This study will use a head-mounted display which tracks eye movements. Participants try to type a query with their eyes on an on-screen keyboard and receive the answer from the system. In the future, we hope that this technology can be a replacement of search engines for youth with severe physical impairments to send query and receive the answer.
Cerebral palsy (CP) is the most frequent cause of physical disability in children in Canada, affecting 2-2.5/1000 children every year. This project aims to establish a Canadian Cerebral Palsy Registry, to provide an epidemiologic profile of CP in Canada reflecting the full heterogeneity of the disorder and provide a platform for population-based research on CP. It will serve to estimate the incidence, prevalence and distribution of cerebral palsy in Canada, while facilitating research in this field.
We want to explore what health and wellness means to young people with physical disabilities and what health activities are important in their everyday lives. We want to hear about what sort of things you do or want to do to be healthy and feel good.
The researchers at the Autism Research Centre, Holland Bloorview Kids Rehab are doing a study to understand how our body signals, like our heart beats, change when we feel frustrated.
We want parents/guardians of children ages 12 to 25 to complete a 10-minute survey one time telling us about their child’s readiness for the transition to adulthood.
Understanding pain trajectories and their association with well-being in children and youth with cerebral palsy
We are asking children and youth with cerebral palsy to help us learn about if they hurt and if it affects them. This study will help us better understand about if and how much pain is felt by children and youth with cerebral palsy.
To evaluate the reliability and construct validity of the FNQ-PR.
What are the Mental Health and Wellness Needs of Young Adults with Spina Bifida? A Stakeholder Engagement Workshop
Researchers from the Bloorview Research Institute would like to invite you to take part in a study about mental health and wellness in young adults with spina bifida. Parents of children or youth with spina bifida are invited to participate in a focus group to discuss findings from a review of the research literature about mental health and wellness in young adults with spina bifida.
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