X


Who We Serve

At Holland Bloorview Kids Rehabilitation Hospital, we care for kids with disabilities, kids needing rehabilitation after illness or trauma, kids whose medical complexity requires a kind of care they can’t get elsewhere.  Every day, Holland Bloorview’s frontline staff embrace kids with boundless potential and their families and ask “how can we help you achieve your goals?” With a mix of services not offered anywhere else in Ontario, we partner to provide the best interprofessional care within our walls and to prepare families for life beyond them. Through teaching and research, we expand how the best care is defined and take those new insights around the globe.

Our Clients in 2016/ 2017:

  • Total clients: 7499
  • Ages: 26% (15+), 21% (10-14), 20% (6-9),22% (3-5), 11% (0-2) 
  • 1114 unique diagnoses 
  • 65% of clients we serve have 3 or more diagnoses
  • Most common diagnoses- Inpatients: 35% Acquired Brain Injury, 25% Cerebral Palsy, 1% Other Developmental Disorders
  • Most common diagnoses- Outpatient: 27%, developmental Delay, 21% Cerebral Palsy, 20% Autism Spectrum Disorder
  • Average client family income: 29% $16K, 20% $28K, 15% $38.5K, 17% $50K, 19%$ 85K
  • 120 kids with disabilities participated in FIRST Robotics
  •  877 families welcomed at parent education workshops
  •  1000+ families accessed the Family Support Fund
  •  881 families found support in our Family Resource Centre
  •  583 Inpatient admissions
  •  Average length of stay (excluding long stay clients): 30 days overall 
  •  55, 3945 Outpatient Visits 
  •  198 families received pro-bono legal services

Beneficiaries by program:

  • 4000 visits from our Therapeutic Clowns to inpatient clients from birth- 18 years of age across 3 units (CCC, BIRT, SODR)
  •  199 kids with a variety of disabilities took part in Music, Arts & Dance Programs
  •  32 instruments donated by the community to the Music Therapy Program 
  •  94% of Independence Program clients (Youth with physical disabilities between the ages of 17-21) achieved their goals
  •  170 family leaders (parents of children with disabilities who are clients at Holland Bloorview) volunteered 2475 hours
  •  Families of youth with disabilities between the ages of 19-21 received 336 hours of high-quality weekend respite 
  •  130 children with disabilities took part in Spiral Garden
  •  12 youth with disabilities, between the ages of 17-21, took part in The Independence Program 
  •  Centre for Leadership projects delivered 7 clinical research studies, 10 surveys, 4 scoping reviews, 5 symposiums, 3 peer review publications, 17 conference presentations, 7 educational presentations, 4 training workshops.

Read more in our 2016-2017 Impact Report - Above and Beyond

 

How We Are Growing

Who We Serve
2015- 2016 2016-2017
Total Clients 7402 7499
Outpatient Visits 54935 55395
Inpatient Admissions 543 583
Age of Clients
0 to 2 6% 11%
3 to 5 22% 22%
6 to 9 20% 20%
10 to 14 21% 21%
15+ 31% 26%
Number of Unique Diagnoses 1074 1114
Outpatient Diagnoses
ASD 25% 20%
Developmental Delay 24% 27%
CP 22% 21%
Inpatient Diagnoses
ABI 22% 35%
CP 19% 25%
Other developmental disorders 15% 18%

 

What We Do

3 inpatient units: 

  •  CCC (Complex Continuing Care), BIRT (Brain Injury Rehabilitation Team), SODR (Specialized Orthopedic and Developmental Rehabilitation) 

12  Outpatient Service Areas: 

  • Neuromotor, hypertonia, spinal cord/spina bifida, seating, cleft lip and palate/dental, prosthetics and myoelectrics, orthotics, acquired brain injury and concussion, autism assessment, psychopharmacology, feeding

4 areas of focus for Participation and Inclusion: 

  • Communication and writing aids, 
  • Recreation therapy and life skills training, 
  • Early learning and development,
  • Music and the arts

8 Client and family programs: 

  • Peer mentorship, legal assistance, on-site accommodations, family support fund, parent talks/workshops, resource centre, on-site healthcare, family leadership program

4 areas of focus for the Teaching and Learning Institute: 

  • Simulation, Training/Internship/Co-op, Faculty development, Evidence to Care
  • 4 Centres for Leadership: Participation and Inclusion, Acquired Brain Injury, Child Development, Leadership in Innovation

Output goals

  • Continue to support our 120+ Family Leaders and guide client and family placement opportunities throughout Holland Bloorview
  • Hold approximately 12 Parent Talk sessions (1-2 per month)  for parents of children with ASD and other developmental disabilities, and parents of children with CP and other physical disabilities
  • Provide 203 hours of high quality, safe respite for youth with disabilities aged 19-21
  • Therapeutic Clown Practitioners aim to engage 800 clients this year 

Research at Holland Bloorview

Bloorview Research Institute (http://research.hollandbloorview.ca/researchcentreslabs)

  • Has received more than $45 million in external funding since 2004, 
  • established 6 endowed research chairs, 
  • secured 2 Canada Research Chairs, 
  • attracted more than 900 trainees 
  • generated over 530 peer-reviewed journal articles
  • 36 international presentations delivered in 2016

The BRI houses the Autism Research Centre and the Concussion Centre as well as 8 other labs:

  • CP Discovery lab 
  • PEARL lab (Possibility Engineering and Research Lab; virtual reality therapies/interactive play)
  • ProFILE lab (Health promotion)
  • PROPEL lab (Paediatrics, Rehabilitation, Orthotics, Prosthetics, Engineering, Locomotion) 
  • SPARK lab  (Supporting Physical Activity-based rehabilitation Research for Kids)
  • TRAIL lab (TRansitions And Inclusive environments Lab)
  • Critical Disability and Rehabilitation Studies (CDARS) lab (mechanisms of social inclusion) 
  • CONNECT (COmmunicationNeuroscieNcE disCovery Team) lab (language,speech, and motor control) 

What We Did in 2016/ 2017

Family Leadership Program: “Family Leadership Program … now includes 188 family leaders who volunteer their time, insights and perspectives at all levels of organizational decision-making- direct care delivery, program and service design and governance. During the 2016/2017 fiscal year, 225 family leaders partnered with staff and community partners on 103 initiatives across the hospital”

Client and Family Relations: “Client and family complaints decreased in 2016/2017  for the fourth year in a row (98), while client and family compliments  to staff and volunteers remained high (820)”

BLOOM: Blog has grown to include readers from 181 countries (up from 153 the previous year)

Therapeutic Clowns: “Met target of engaging 800 clients per year, focused on patients on the CCC unit (these patients receive fewer therapies than other inpatients).” From in-patient clinician surveys: “79% of patients were more communicative, 94% were more sociable, 70% were less anxious”

Family Support Fund: “In 2016/2017 fiscal year, 875 applications were processed and funded. This represents an increase of 354 applications (or 68%) from the previous fiscal year. Of the 75 families who received financial support, 71.5% of families disclosed an annual household income under $45,000, and 28.5% disclosed having a household income under $25,000…The distribution of funds was allocated as follows: Equipment $112,879.50, Recreation $78,949.50, Respite $8235, Transportation $10,660 Accommodations $5539, Medications $3325”

Music & Arts: 
In 2016, 345 children registered for Music, Arts & Dance programming  and 202 children registered for Spiral Garden Program (130 with a disability, 55 typically developing children)
A 43% response rate from family satisfaction surveys indicates an average score for overall family satisfaction of 96%

The Independence Program
 
Graduates of the TIP 2016 program are now:

  • Choosing to independently use subway and bus instead of Wheeltrans to meet up with friends and go to college
  • Becoming more involved in meal preparation at home, and directing their own attendants for most meals
  • Working in a part-time job after the support of TIP follow-up connected them with employment services
  • Starting to think about dating, as the TIP experienced increased comfort level with respect to relationships
  • Choosing to socialize more at school than they previously did 
  • Continuing to volunteer at Holland Bloorview

Outcome timing post completion
The Independence Program

See TIP alumni survey (Kingsnorth S, King G, McPherson A, Jones-Galley K): https://www.ncbi.nlm.nih.gov/pubmed/25251776

  • Study retrospectively examined the achievements, skills acquired and program attributions of youth and young adults who took part in this three-week immersive teen independence program over a 20-year period
  • A total of 162 past graduates were invited to take part, with 78 doing so (a 48% response rate)
  • Majority of respondents were female (71%), had a diagnosis of cerebral palsy (55%) and ranged from 20 to 35 years of age (92%).
  • Despite a range of outcomes related to the achievement of adult roles, high levels of life satisfaction and overall quality of life were reported. 
  • Nearly every respondent reported using the skills they learned at the program in their lives afterwards and a high percentage attributed the acquisition and consolidation of core life skills to participating in this intensive immersive program.
  • Respondents reflected very positively on the opportunities provided by TIP to develop their independent living and life skills, extend their social networks and understand their strengths and weaknesses. 
  • Findings validate the importance of targeted skill development to assist young people with physical disabilities in attaining their life goals 

Give it a Try
Increased enrollment of IFP participants into the Give it a Try phase over the three years:  Year 1 - 25%, Year 2 -57%, Year 3 - 52% 

Three-Year Goals: 

  • 96 previously inactive kids engaged in sport/fitness activities 
  • 50% with disabilities; 50% without disabilities 
  • 4 'graduates' as peer mentors 
  • 96 parents participating in interviews 
  • 1 web-based training module for fitness instructors 
  • 30 fitness instructors trained in delivering IFP 
  • 3 published papers 
  • 15 presentations
  • Government funding to support research study to evaluate benefits of IFP over a social  group intervention 

Results to Date: 

  •  71 participants (40 completed & 31 in progress): 41% with disabilities; 57% without disabilities
  • 70% male; 30% female
  • 2 peer mentors
  • 12 parents participating in interviews
  • 1 web-based training module in progress
  • 25 instructors & 6 volunteers trained
  • 2 papers under revision; 2 in preparation
  • 13 presentations
  • 3 successful research grants and 2 submitted; decision pending 

Outcome goals

The new 5-year Strategic Plan objectives are: Personalize Pathways, Discover for Action, Connect the System.   Priorities are: drive excellent quality of care, advocate for inclusion, pursue partnerships, expand output and impact of research and teaching, continue to build high performance leadership 

See the Quality Improvement Plan here

Outcome definitions and calculations
Further information here http://research.hollandbloorview.ca/outcomemeasures

Learning

The new five year vision and strategy for Holland Bloorview was created through many conversations with diverse voices across the organization.  Over several months stakeholders came together to share the truth of their experience today, and to imagine and plan a world of possibilities. This strategy focuses on how to take the valued work of Holland Bloorview and amplify it. The Holland Bloorview community that worked together to create this strategy is deeply committed to creating a world with no boundaries.

Holland Bloorview will be a model and leader for social and system change to support the full inclusion and belonging of children and youth with disabilities. Every child, youth, and family will have a supportive, individualized experience from the first point of contact.

Read more on our 2017 - 2022 Strategic Plan - No Boundaries