Every time Alifa explains Junayd’s diagnosis to
people they meet, her wish is always that she doesn’t
get ‘that look’. ‘That look’ involves a sudden change in
facial expression, to one of pity and sadness.
Lena remembers getting to know her daughter, Mia,
one word at a time.
“She had maybe a dozen words,
including ‘hi, bye, ya (for Yes), Mommy, Daddy,
’ and ‘uh’ (for up),” said her mother Lena.